In its purest form, science seeks to determine how the world works and endeavors to improve the human condition. Yet, the current culture of research undermines this value-system, as institutions across the nation look for ways to capitalize on discoveries. The commodification of information, particularly of the genome, hinders innovation and prevents the discovery of novel drugs and cures., researchers can either seek revenue for their underfunded research or ensure the accessibility of scientific knowledge, but they can’t do both. Genomic databases are better off when they are free and publicly accessible. Unhindered by ownership claims, these libraries promise better health outcomes, support stronger research networks, and reinvigorate scientific ideals. I needed to find the simplest way to communicate this idea to the world. We built website to house the database and to use it as a platform to educate the public on the importance of scientific collaboration.
Ambry Share quickly became a major story in the scientific community with key articles appearing in the New York Times, Forbes, Newsweek, USA Today, Huffington post as well as numerous genetics publications. We also did a media tour with the CEO and COO of the company around the country appearing on numerous daily news shows.
We also launched a social media campaign “Sharing is Curing”, This campaign emphasizes the value of sharing genetic data to help the scientific and medical communities better understand human disease. For every Ambry Facebook “like” and/or Ambry twitter follow, Ambry Genetics will donate $1 to Global Genes a patient centric charity for rare genetic diseases. Monies raised from this campaign will support Global Genes’ programs and resources that have direct patient impact.
Driven by strong content and back by hard science the campaign resulted in millions of impressions, a massive surge in site visits, and an increase in partnerships from the scientific community on the project.